So a good friend, and the inspiration behind my decision to start writing this whole compilation of thoughts, suggested that I back track a little here… She mentioned that it might me a good idea to share my experiences with living with MS, as well as a bit of history behind my journey through nutrition and fitness which has led me to today.
Ok. When it comes to MS, there really is no simple explanation. It sucks sometimes. This being said, I try to not let it change who I am… Some of the challenges I’m more than willing to share, some I’m not :-p The biggest problem I’ve come to expect is not knowing what to expect. Everyone will have a different experience, and no one will be able to tell the recently diagnosed “ok, so this is what’s going to happen”. All you can do is learn to pay more attention to what your body is telling you.
The most consistent complication I have is fatigue. It can be completely debilitating and impossible to explain just how bad it is. If you don’t “know it”, you have no idea! (And I wouldn’t want you to!) When I was first diagnosed, I resisted the suggestion to start on any “disease-modifying” treatment. Yeah, they do call it that. I guess when there isn’t a cure, you have to come up with some other kind of a name which sounds appealing. I was a young punk who thought I good tough it out on my own. I also wasn’t the type of person who ever liked to accept the need to ask for help. I’ve gotten over that over the years :-p When I finally accepted the need to give the drugs a shot, I started with Copaxone. It was a once daily injection which, other than pretty ugly site reactions, was not so bad… and actually helped with the fatigue a bit. Only problem there, it didn’t seem to help slow the progression of my disease and the MRI’s showed my worsening condition. Boo. So my neuro suggested the switch to Betaseron. This meant less needles (yeah! only 3 times a week!) BUT they make me feel like crap after, hence bed time is the only option. It’s a more aggressive treatment, which has done a good job so far at reducing new flare ups, but the fatigue returned with a vengeance. 😦
There is soooooo much more I could talk about, but that will have to do for now. Every day I am affected by this disease. Every day the people close to me are affected as well. I’m lucky to have an incredible support system at home, Ange has been my ROCK 🙂 More than a month ago, I watched a video which was shared by my friend Amanda that gave me the inspiration to fight back. To see if there wasn’t a way to take the reins, rather than just picking myself off when I get bucked off. THIS is where the connection exists. My rants about Primal Blueprint and Paleo and Crossfit all do come together in the end. Check it out if you’d like: